About Us


We're a pretty normal family, as normal families go. Papa Bug, Mama Bug, one happy little boy Bug, a dog and two cats in a little home on a beautiful piece of land. Nana Bug doesn't live near, but she comes to visit every month to check up on her happy little guy.

We'd been seeing the symptoms for several months but we didn't know it. When he was six months old he startled his Aunt by jackknifing in her arms. When he was seven months the daycare workers thought he was teething because he kept startling and crying out as if he was in pain. Each episode just looked like he was startled, or he lost his balance and we didn't realize there was a problem until they got stronger, more frequent, more eye-rolling and tense. On the day he turned eight months old he had an episode on his changing table that sent us scrambling to call his pediatrician and racing to the emergency room.

I guess this blog is about all that came after that.